Rally_4_Rian

Raising awareness about our daughters battle with CDKL5

NY, アメリカ合衆国

概要

Follow Rian through her journey with CDKL5 Deficiency Disorder on facebook at Rally 4 Rian- CDKL5. CDKL5 is a rare genetic disorder that results in severe neuro-developmental impairment and early onset, difficult to control seizures. Rian receives full care at Boston Children's Hospital and we are selling Rally 4 Rian gear to help support our daughters medical fund. THANK YOU FOR YOUR SUPPORT!